Neurofibromatosis Type 1 (NF1) is the most prevalent genetic disorder of the central and peripheral nervous systems, affecting about one in 3,500 people. It is a progressive, unpredictable, and variable disorder that has no known cure. In addition to physical and cognitive manifestations, studies also found children with NF1 tend to internalize problems and struggle socially. This paper examines factors that may contribute to social and emotional difficulty for adolescents with NF1 and offers suggestions for intervention.
Addressing the Psychosocial Needs of Youth with Neurofibromatosis: A Family-Centered Approach to Fostering Self Regulation and Learned Optimism
Carol Elizabeth McCartan
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